FOXG1 syndrome is a rare genetic neurodevelopmental disorder caused by a mutation in the FOXG1 gene, one of the first and most important genes for early brain development. There are only about 1100 known patients diagnosed with FOXG1 sydrome worldwide. This foundation is a parent-led patient organization driving the research to find successful and precise treatments, and ultimately a cure, for every individual in the world with FOXG1 syndrome, while deeply focusing on patient advocacy, education, and family support. You can read about my diagnosis here.